Corrective Surgery and Local Sports clubs

Apologies for the late arrival of this post, should have been up yesterday.
I imagine at some point that everyone with a “spare part” – Hearing aid, cochlear implant, prosthetic limb, glass eyes, wheelchairs, dentures etc has felt the urge to, or had to, undertake some form of DIY modification to make the offending article work; sit comfortably; stop hurting – whatever.
Yesterday I carried out some corrective surgery on Two Big Ears because I have a deformed right pinna due to a mild form of Treacher Collins Syndrome – the right side Big Ear will not stay in place.
Like all good pioneers, I am not going to reveal my medical secrets as it might be a breakthrough for deaf people and earn me untold riches from the NHS or private health. I am going to test it out for a while. But what I can tell you is that the procedure only requires a ballpoint pen and two elastic bands – go figure.
Yesterdays experiences got me thinking that getting children and young people into sport, local sport clubs. Is a bit like corrective surgery.
Joanne and I have been looking after her eight and ten year old grandsons this weekend. On the way over to see them yesterday, Joanne wondered If the two pairs of Two BIg Ears would freak them out and would we get permission from the eight-year-old to allow Two Big Ears to take him to his weekly Taekwondo lessons.
There was no freak out. eight-year-old loved Joanne’s Two Big Ears and tried them on for size. My Two Big Ears were “embarrassing” , nevertheless less I persuaded him to let me keep them on and promised to explain why I was wearing them in the car on the way to “kick someone in the head”.
Try to imagine the stunned expression on the faces of coaches, parents and athletes as we walked in to the gym. I really would like to know if that’s the same reaction disabled people still get today when they turn up announced at a local sports activity and hope to join in? Just think about it, what must that feel like for everyone.
Don’t get the wrong end of the story here, the guys at West Midlands Taekwondo are fantastic. I quickly got them out of their misery by announcing that I was with eight-year-old and I had £10 for his subs.

Normal service quickly resumed and I really enjoyed watching my first Taekwondo lesson, there were five little people with laser sharp focus, taking in every instruction from coach Mike Meese. Inspiring to watch a child being taught the basic foot movements and another carry out intricate arm blocks and punches. Only 10,000 hours away from their first world championship medal?

Of course, I made my daily contribution for the GB Deaflympics team I gave one of the mum’s and Mrs Meese a copy of the Introduction…
I would like your permission to allow me to share my inner thoughts as I watched that lesson, after all, that is the purpose of this blog.
There was a girl training with eight-year-old who had a physical disability – I wave hands in the air for her dad for including her in his sport. Many children born with disabilities are not given these precious life chances to enjoy sport. Her movements are restricted so she could not show the finese of of the others, but we could all see her for what she was and proud of what she was doing.
But this did make me wonder about the “hidden disability” of deafness. Instructions were given verbally in a mixture of Korean and English alongside a demonstration of the movement required. Had a deaf child turned up yesterday morning, the coaching methodology would have been insufficient to make sure that the child was able to follow what was going on. But I have my utmost faith in Mrs and Mrs Meese and the other members of WMTKD that they would make the necessary adaptation for the deaf child. They have my UK Deaf Sport business card, they can contact us as soon as a deaf person joins their club, we will be there to help them.
UK Deaf Sport is working in partnership with sports coach UK and the National Deaf Childrens Society we are currently developing a new workshop on communication skills for sports coaches which will be piloted later this year with a launch in the spring – if all goes well, I look forward to personally delivering the workshop to everyone at WMTKD.
First impressions really do count, imagine an astute parent of a deaf child turning up to yesterday’s lesson and making a personal assessment on its suitability for their child.
On the basis of what I saw yesterday, they would probably not return the following week. Parents of deaf children have a point of view quite different from mine, I am pre-lingually Deaf and a fully qualified PE teacher, sports coach, coach tutor so have my perspective on things. Parents are experts on their own children but not necessarily experts on inclusive sport for disabled children.
When eight-year-old and I got back home, Mum and Dad were almost ready to leave for their well deserved weekend break. Dad and I had a chat about the lesson and his hopes for both his boys. I learnt that Dad had taken 10-year-old to the local Sea Cadets but decided from his point of view that there was something not quite right about the group, it made him feel uncomfortable, so they are looking for something else to do. First impressions, rightly or wrongly are powerful – we, in sport have to get it right first time otherwise we risk losing newcomers.
There is a boxing club I know who have an excellent approach to first time visitors and I assume it is also replicated at all ABCs – I hope. Both parent and child are invited to observe their first session, if the child is straining at the leash to have a go, they can. When Joanne’s son showed an interest in the sport we took him along to the club to observe.
The volunteers at the club explained everything to us, showed us around the venue etc, made as all feel welcome. But, we never went back. Although the club explained that they had worked with another deaf child before, this did not persuade our 14 year old. He was concerned about the enormity of the communication issues facing him. It was his own personal impression of what he saw.
If I had not been there, Joanne would not have taken her son because there was nobody to communicate with them. If there had been another deaf person at the club, (volunteer, boxer, coach, or parent) – then there would have been a higher possibility of him returning to give it a go.
It’s human nature, we all want to be with people like ourselves. There has to be a common denominator that compels us to join a new club, but sometimes the sport itself is not enough.
Deaf people need someone that they can communicate with. The little girl I admired yesterday, her father is a player – Taekwondo is a family thing.
In the beginning, 8-year-old had to be told he was going to his lessons, it was not out of choice, even now, Mum and Dad have to make sure he’s ready to go and take him there. They do this because they want him to have the best chances in life, they believe that sport is a force for good.
Getting disabled children involved in a local sports club is a bit like corrective surgery, get it wrong and you are psycologically scarred, sometimes for life and the task becomes much harder.

George Elliot’s stones

I promised in my first post that if you keep in touch with the blog I will explain the reason for Two Big Ears. What I will say now is that its not going to be possible to explain it all on one post as there are going to be so many different perspectives to take on this. But ultimately, it is about educating and making people aware of the Deaflympics, UK Deaf Sport and related issues.
In my daily work, I am always telling people what I do.  I can explain it all to one person only to find a few minutes later I am saying something completely different to the next person. This is because we are all human and when we interact with each other we say things that will enable us to make the quickest connection and get our messages across.
But we do need to have consistency in messages, especially if there are important points to get across to people.

This is what I use at work

So, with that in mind, I have created a fact sheet – well, that’s what I have been calling it. But in reality it is an “Introduction” so thats what I am calling it from now on – you can read a copy of the introduction that we have been handing out to people here.

So, enough of the background static… I know you are dying to know what happened today..

You don’t know how pleased I am to tell you that my gorgeous wife Joanne has now got Two Big Ears! We have been out together today and she has been wearing her TBEs with me.

Our first port of call was George Eliot Hospital – I have been going there on and off for almost two years now trying to get rid of a troublesome kidney stone. Its a really painful bugger when it moves! The treatment is really interesting, instead of cutting people open, they now apply ultrasound-waves to shock the stone and break it up into small pieces (lithotripsy). Sometimes is a quick solution but for others it can take several treatments before anything starts to shift – In my case I have needed three visits to the coal-face. Today, was finding out how things have progressed.
Joanne was in a fit of giggles as she noticed the many different reactions Two Big Ears provokes from people. In the car park, a bloke walking towards me did not notice anything at first because he was not looking, talking to his mate. As we got closer he started to look where he was going – he almost jumped out of his skin! – poor bloke! I gave him an introduction

Main out-patients reception, all the locals of George Eliot NHST can see this place in their minds eye – but for you outsiders- it a really busy place to be, we could feel all the eyes homed in on Two Big Ears! A nurse came up to us in the queue “Right then, I suppose there is a reason for all this is there?” I handed her the introduction “Have a look at this, please give us your support” – Response, “Ah, great, wonderful, I have a hearing aid too” and she pushed back her hair to show me.
Now, those of you dear and close to me will know that I have been in and out of hospitals all my life – we will keep all that for another time. Anyway, I am trying to say that NHS staff do their level best to help you especially if you are a regular, but when you are deaf its the same old problems each time….
But Two Big Ears has a really interesting affect on people. I asked the receptionist if they had booked my interpreter for the appointment. Unfortunately, nothing was in the book. But this time the lady went out of her way to the ‘transport’ office to double check for me! She came and found me in the waiting area and apologised that nothing had been organised. Its really frustrating when this happens, hospitals should have this type of information on file so that when BSL users have appointments, the interpreters are automatically booked. Maybe one day…
“I will just have to hope for the best” I told Joanne as we waited. I was thinking of the rigamarole of asking the Doc to repeat himself, or slow down or whatever. Yeah whatever…
We got called down to the consulting rooms – Dr Raaj was in the waiting area. “So whats it all about?” – I gave him an introduction…
We were quickly ushered into a consulting room and asked to wait… it felt like ages. Joanne suggested that they had moved us on quickly because they wanted Two Big Ears out of the way – quite possibly, or are we just being paranoid about the affect of Two Big Ears ?
The consultation was one of the very best I have had for years! I usually find Dr Raaj quite difficult to understand. But today he was a brilliant communicator! It was almost as if he had just done a crash course on Deaf Awareness, it was a great communication experience. He took great care to make sure we understood what was happening and gave me time to relay to Joanne.
In the end it was all brilliant news. You can see it in the photo – I will leave you to “spot the difference” in the images. The clue is “good news” 
On the way out of the hospital we got called over by the two ladies manning the Macmillan Information desk “What’s it all about?” – I handed them an introduction “Please have a look at this, we would like your support.” This time, instead of walking on, we decided to wait for their responses. “That’s a lovely idea, where can we get those ears ?” I am going back next week with two pairs of Two Big Ears for the Macmillan ladies and a stack of Introductions… thank you ladies!

This afternoon we were with some Deaf friends who were having their home valued by an estate agent, we talked about Two Big Ears, the agent read the Introduction, she explained that her father was deaf…

The young lady at the Macdonalds drive through… rabbit, headlights…. say no more…

To the car on the motorway, sorry if we made you take the wrong turning and swerve all over the road, you should have been looking at the road not Two Big Ears

Joanne: “These Two Big Ears are itchy”
Stuart: “Must be like that for amputees and their legs”

Finally, We had another brilliant piece of good news today for UK Deaf Sport and the 2013 Deaflympics, but I am not allowed to tell you yet… you have to keep watching this blog.

Please tell everyone to follow us – we need to convert people to understand deaf sport and the Deaflympics, tell them about Two Big Ears

Batty at the Belfry

First job of the day today – strategic planning meeting at The Belfry with Simon Kirkland of Sport Structures.

Public impressions? On the drive into The Belfry, I did wonder how the staff would react to Two Big Ears – would I be asked to remove them or leave quietly?  No problem. whatsoever. A group of ladies in the lobby saw Two Big Ears a mile away – must have been at least ten smiles in that group – I hope I made their day – I passed them a fact sheet….
Lovely couple walking past me, thanks for your smiles… fact sheet…

I found Simon in the Belfry Bar, all the business suits looking at me as i walked through. The looks on their faces….

I apologised to Simon for being 30 minutes late – explained that  had to find a pair of ears… “I cannot take you seriously with those things on”. But we did take it seriously the Two Big Ears provoked a deep conversation on the impact of last nights Opening ceremony etc.

Pass on the word Simon – you have a fact sheet….

GET YOUR BSL VERSION HERE

Ear we go!

Thanks to Ted at Clowning Around, Nuneaton for my new ears!
“my grandson is deaf” he told me.
Now we would never have made that connection otherwise.
I left him with a fact sheet

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GET YOUR BSL VERSION HERE

Opening Ceremonies

Watching Olympic/Paralympic opening ceremonies on TV, remind me how privileged I have been to walk out with the GB team at the 2005 Deaflympics in Melbourne, Australia. I know the feeling… even now, 7 years later I get emotional about it.

I have woken up this morning and prepared a fact sheet to hand out to people so that they might understand Two Big Ears.

I am waiting for the shops to open so I can go and buy my new ears. I am feeling utterly terrified of what I am about to do. Will people notice anything? Will it work? Its a bit like getting ready for a “Two Big ears Opening Ceremony”.

GET YOUR BSL VERSION HERE

Big Ears is born

Two Big Ears is my way of raising awareness about the Deaflympics.

Whilst we are all enjoying the London 2012 Paralympics, I am going to see how the public react to me wearing a pair of big ears everyday right up until the Paralympic flame goes out at the Closing Ceremony.

If you don’t quite understand what I am trying to do, please keep checking this blog as I will update my experiences daily and in the process, you will hopefully give the Deaflympics your support.

GET YOUR BSL VERSION HERE